Our newsletter, now named "NewsLink" has been published continuously since 1997. All available issues are published here. Browse through them using the links at the bottom of the page, or use the "search..." box above to find items of interest.


February 2010 - New member Ian takes the plunge

The story starts on a plane coming home from my honeymoon in Jamaica last year. My wife, Louise, and I had both watched the film The Bucket List on the plane. When we got home we decided to do our very own bucket lists (a list of twenty five things to do before you kick the bucket). I decided that number three on mine would be ‘to do a bungee jump’. I only put this in for a laugh and never in a million years ever thought I would do one. However, a year later on our first wedding anniversary I was opening the present that my wife had bought me and was surprised to find out that she had bought me a bungee jump from Virgin Experience Days.


September 2009 - No longer feeling alone

My name is EM and I have suffered with H.S.P. from birth.   I have been a Newslink receiver for a number of years.

For years I've read about the meetings and region get togethers, but this year our Region 6 co-ordinator Peter B contacted me and I and my daughter Kathleen who also has H.S.P went to Porthcawl.

Oh was I nervous, fearful, of meeting someone who had the same condition as myself and my daughter.   I grew up in south coast Ireland out in the country in the valley of Slieve N?mb?n.