Our newsletter, now named "NewsLink" has been published continuously since 1997. All available issues are published here. Browse through them using the links at the bottom of the page, or use the "search..." box above to find items of interest.


September 2012 - I conquered the London Marathon for HSP

My journey to the finish line started back in November 2011 when I discovered I had been allocated a place in the 2012 Virgin London Marathon. Having run the race the year before, I knew a little about what was in store!!!!! My training started just after Christmas and for the next 16 weeks, I spent my weekends and evenings pounding the streets running (albeit some weeks harder than others!). They say that in running a marathon….. The real marathon is in the training, and the race itself is actually the reward! As odd as it sounds, it’s definitely true. I decided to make my training efforts worthwhile and raise money for charity - I chose the HSP Support Group as my mum suffers from HSP and I know what great work the charity does to support those affected by HSP. So far I’ve raised over £700 and my employer will match my fundraising, which will total over £1500 including gift aid! If you would like me to help raise even more money, please visit my fundraising page at


May 2012 - HSP – A Little More Time to Spare

As getting around was becoming more difficult, I stopped work half way through 2007.  I have always enjoyed getting around out of doors and so I set out to try and get round to seeing as many gardens in the Kent, Sussex and Surrey area while I was still able to.  I don’t go anywhere very fast now but hey, what’s the hurry?
As this condition started to take effect, I tried to travel around the world and see the places that appealed to me.  As that has become more difficult, I never cease to be amazed and delighted by the beauty of what we have on our own doorstep in the British Isles.

I have become conscious of how important my sight is to me to be able to enjoy these things and for that reason, have always felt a particular sympathy for people who have lost or who are losing their vision. About 18 months ago, I rang a local blind charity to see if they needed volunteers for anything. I was quite surprised to hear that they were looking for guardians who could help blind people make trips to the theatre, to cinemas and museums. I explained that with my disability I was more likely to be a hazard than a help! They thanked me for calling, took my details and said that they would contact me if any other opportunities arose.