September 2018 - Debs had it off for Charity

I am 56 and have had HSP forever, my brother and a sister also suffer with it. My son has just had the blood tests & sadly is carrying the SPG 4 GENE also. I’m thinking it’s about time we had some answers so I’ve raised £1000.00 for medical research.

I don't normally like being centre of attention but to be honest I loved it because I was doing something very close to my heart and I had my husband’s total support. I really didn't realise I had so many friends. On September 11th we set up in the front of the ASDA store in Shoeburyness (where I work) and my boss, Max, did the honour of shaving my head. It was an amazing experience and it seems I had a huge crowd all cheering me on. We raised £197.00 that morning and I can say it’s the best thing I’ve ever done.

Hopefully some day we will get some answers I’ve already raised £1000 for HSP on my Just Giving page which I believe is still up and running so if you want to donate or share amongst your friends. All the money I raise is for research into HSP and I’ve donated my hair to The Little Princess Trust, a charity that provides real hair wigs free of charge to children and young people up to the age of 24 that have sadly lost their own hair due to cancer treatment and other illnesses.

Debbie C

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