HSP Support Group

Welcome to the Hereditary Spastic Paraplegia Support Group. The group helps people diagnosed with Hereditary Spastic Paraplegia (HSP). We are a UK based charity, Registered in England and Wales. Our group was started as a 'self-help' group in 1989 by Stephanie Wyatt to support her affected husband and son. Today we have nearly 400 members, but are always trying to reach more people affected by the condition. So, whether you have HSP, love someone with HSP or are searching for information about a diagnosis, don’t face it alone, join the HSP Support Group today for help, support and practical advice on living with HSP.
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Mission statement

People with Hereditary Spastic Paraplegia (HSP), their families and carers are at the heart of everything we do:
Our information and support helps improve the quality of life for those affected by HSP.
Our friendly support community helps with sharing ideas and reducing feelings of isolation.
We support research into HSP, including developing treatments and improving understanding.

Latest news and events

Oct / 2025

Latest Newsletter

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Oct / 2025

World HSP Day – October 17th

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Sep / 2025

Medway Neuro-Tech 25

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Upcoming events

No event found!

Our latest Newslinks are online! Find out what HSP Support Group members have been up to.

View the HSP Support Group newsletter.

Meeting reports

Plus you can read about our latest meeting reports online too.

Find out about past meetings.

World HSP Day

Discover more about the global event for the HSP and PLS community.

Get involved.

Supporting everyone on their HSP journey

Contact us

If you have a question about the HSP Support Group please get in touch.

Contact HSP Support Group