Our newsletter, now named "NewsLink" has been published continuously since 1997. All available issues are published here. Browse through them using the links at the bottom of the page, or use the "search..." box above to find items of interest.


September 2015 - Our gift to you

"I have had the honour and privilege to work for this wonderful school over the last 15 years. It is a Primary Special School in Birmingham for 135 children with moderate learning difficulties, but sadly I have to leave at the end of this academic year. I was diagnosed with HSP just over a year ago, but it has progressed rather rapidly, and it has been decided that I now need to retire. You can understand my emotions as you read on - these are my little stars - I will miss them all so much!"

Our Gift to you - From all the children at Dame Ellen Pinsent School

We have had a fun day in our school today! Our Head-Teacher, Mrs. A, told us that we didn't have to wear our school uniforms for one special day, but could choose anything we wanted to wear. To be able to do this, Mrs. A asked that we each brought a little bit of money into school, and when it was all collected in, we could send it to a special charity. We raised an amazing £165!!

Mrs. A then told us all about HSP, and how people can become very disabled with it, and that our Resource Technician has this condition. We wanted you to receive our special gift, which we hope will be able to help everyone in some way with this disability.

With love from us all xXx

Download full newsletter


January 2015 - Christmas Arrived Early

Steven being presented with a TGA BreezeDespite living with Hereditary Spastic Paraplegia, Steven from Marnhull, Dorset, has been able to regain independence outdoors and re-live his passion for the countryside and point-to-point horseracing, thanks to a community-donated TGA Breeze mobility scooter with off-road capabilities. Before his condition became too severe, Steven owned a successful equestrian transportation business that fulfilled his love of the outdoors. Following the reluctant sale of his business, Steven was forced to spend considerably more time indoors with restrictions on his outdoor independence – this has just changed thanks to the support of his local community.

Instigated by the HSP Support Group and its relationship with The Old Thatch pub near Wimborne, donations have been raised to purchase a new, state-of-the-art TGA mobility scooter so Steven can once again access the countryside. Customers and staff at The Old Thatch pub have worked together to raise funds to purchase the new scooter. This is the same type of scooter that won the Top Gear extreme mobility scooter challenge, which was broadcast on BBC2. Steven will now be able to tackle local rural tracks and fields on his TGA scooter as it has an 8mph top speed, wide high-grip tyres and extra power and performance. Owning this Breeze has only been made possible by several fundraising activities since July. Donations have been gathered from a sponsored skydive by four members of pub staff and relatives, collection tins, live music, BBQ’s and car washing at The Old Thatch. These funds were dramatically increased when, in support of a local resident in need, the Sturminster Newton Round Table made a generous donation.

Download full newsletter