Newslink

Our newsletter, now named "NewsLink" has been published continuously since 1997. All available issues are published here. Browse through them using the links at the bottom of the page, or use the "search..." box above to find items of interest.


 

August 1998 Newsletter

With another thirteen new members to announce since the last Newsletter, our numbers continue to rise. Given that Dr Evan Reid estimates that some 5000 people in the UK suffer from the FSP condition, that means just 4890 to go...

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February 1998 Newsletter

A belated Happy New Year to you all.... all 102 families!! Yes, we have at last a membership of over three figures. But don’t break out the champagne just yet; this number includes a rising proportion of ‘dormant members’ - those on our membership listing who have chosen not to positively renew their membership. I am the first to acknowledge that there is only a limited amount of good that the FSP Group can provide, only a limited amount of information we can disseminate and only a limited number of meetings we can hold. So if you feel the Group no longer has a role to play for you personally then please do let a committee member know, so we can minimise unnecessary printing and posting. Let me emphasise that at the AGM last year the meeting endorsed the committee’s policy of asking for NO subscription fee if circumstances dictate, so please do not let money be a factor. Therefore when membership renewal time comes around in mid-year, please do choose to positively opt in, or positively opt out - your choice...

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