Our newsletter, now named "NewsLink" has been published continuously since 1997. All available issues are published here. Browse through them using the links at the bottom of the page, or use the "search..." box above to find items of interest.


November 2004 - Under the sea with Philly B

Well hello to you all. My name is Phil Burton. Five years ago I was diagnosed with HSP and it is getting in the way a little more as time goes by, as it is for all of us! I consider that I have been very lucky to have had 40 years ish of good health although sports wasn’t very good, my walking/balance and carrying weighty items was not very good but it was just put down to me being me.


August 2004 Newsletter

Welcome, to the August edition of the FSP newsletter. It doesn’t seem possible that it’s been two years to the month that I took over from Ian (Smith) as Newsletter Editor. I personally did not perceive the quantity of knowledgeable rewards I have gained from editing your quarterly newsletter. Participating in a group that is always on the lookout for new challenges has broadened my horizons threefold.