Our newsletter, now named "NewsLink" has been published continuously since 1997. All available issues are published here. Browse through them using the links at the bottom of the page, or use the "search..." box above to find items of interest.


February 2005 - Learning to live again

I'd like to start my story with memories of my school years. Sports sessions were a dread for me. I was no good at sport and had weak ankles, as simple as that. Leaving school, employment, nights out with friends, I began the next stage of my life.


November 2004 - Under the sea with Philly B

Well hello to you all. My name is Phil Burton. Five years ago I was diagnosed with HSP and it is getting in the way a little more as time goes by, as it is for all of us! I consider that I have been very lucky to have had 40 years ish of good health although sports wasn’t very good, my walking/balance and carrying weighty items was not very good but it was just put down to me being me.