Our newsletter, now named "NewsLink" has been published continuously since 1997. All available issues are published here. Browse through them using the links at the bottom of the page, or use the "search..." box above to find items of interest.


May 2006 - Helping those who help us

Now we have achieved charitable status and raised a reasonable level of funding, we were very proud to be able to support a medical team researching HSP. This was the first time we have been in a position to fund a research programme, and it is hoped that the group can do more of this in the future. The following words are from Dr Evan Reid who is head of the research team.


February 2006 - What a Start to 2006 for Pattie and Amber

So much has happened since my story in the August Newslink I thought it would be good to share with you the news about myself and Amber.

I have now passed my NVQ level 3 course on Emotional Intelligence. Whilst I knew it would be hard work I was determined to see it through. Over eight months I have done about 3 hours work a week. The eight individual units contained five to eight assessments for which a report of some 250 or 500 words were needed depending on the particular subject.