Our newsletter, now named "NewsLink" has been published continuously since 1997. All available issues are published here. Browse through them using the links at the bottom of the page, or use the "search..." box above to find items of interest.


September 2009 - No longer feeling alone

My name is EM and I have suffered with H.S.P. from birth.   I have been a Newslink receiver for a number of years.

For years I've read about the meetings and region get togethers, but this year our Region 6 co-ordinator Peter B contacted me and I and my daughter Kathleen who also has H.S.P went to Porthcawl.

Oh was I nervous, fearful, of meeting someone who had the same condition as myself and my daughter.   I grew up in south coast Ireland out in the country in the valley of Slieve N?mb?n.


May 2009 - India - Work and takeaway memories

What would you say if I said I wanted to work in India for a short time?   That was the question I asked my wife, Stella one evening as we sat down to dinner and the immediate reaction was to see her face drop and a tear appear.   I have hardly been apart from my wife in 34 years of marriage let alone work abroad.