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Our newsletter, now named "NewsLink" has been published continuously since 1997. All available issues are published here. Browse through them using the links at the bottom of the page, or use the "search..." box above to find items of interest.


 

September 2018 - Debs had it off for Charity

I am 56 and have had HSP forever, my brother and a sister also suffer with it. My son has just had the blood tests & sadly is carrying the SPG 4 GENE also. I’m thinking it’s about time we had some answers so I’ve raised £1000.00 for medical research.

I don't normally like being centre of attention but to be honest I loved it because I was doing something very close to my heart and I had my husband’s total support. I really didn't realise I had so many friends. On September 11th we set up in the front of the ASDA store in Shoeburyness (where I work) and my boss, Max, did the honour of shaving my head. It was an amazing experience and it seems I had a huge crowd all cheering me on. We raised £197.00 that morning and I can say it’s the best thing I’ve ever done.

Hopefully some day we will get some answers I’ve already raised £1000 for HSP on my Just Giving page which I believe is still up and running so if you want to donate or share amongst your friends. All the money I raise is for research into HSP and I’ve donated my hair to The Little Princess Trust, a charity that provides real hair wigs free of charge to children and young people up to the age of 24 that have sadly lost their own hair due to cancer treatment and other illnesses.

Debbie C

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May 2018 - Dorset Adventurer to challenge five gruelling 5km peaks in eight days for HSP

Wimborne man Will Watson will be tackling the route to Everest Base Camp in September 2018. All funds raised will be donated directly to the H.S.P. Support Group, a registered charity who work very closely with people who suffer from hereditary spastic paraplegia (disability to the lower limbs).

“I didn’t want people to pay for something on my bucket list, instead any donations will go directly to such a deserving cause. The route will take me over some of the most arduous and hostile terrain on Earth, I'm so excited at conquering it.”

The journey through the mountains to Everest Base Camp takes in some of the highlights of the Himalayan mountain range. The expedition begins at the World-renowned Lukla airport, classed as one of the most dangerous on the planet. Moving onward through Namche Bazaar, Will will take advantage of the last main town before heading into the mountains. He will pass the World famous Tengboche Buddhist monastery, at a height of almost four kilometres, and summits such as Kala Pattar, Gokyo peak and Chukkung Ri, reaching a maximum height of over five and a half kilometres.

Will has already successfully ascended Mt Kilimanjaro, hiked the Himalayan and Dolomite mountain ranges, competed in charity boxing matches for Wimborne ABC/Hit Fitness and has been studying and training for the past two years in preparation for joining the Royal Navy. Will is also a high ropes instructor at Go Ape, Moors Valley Country Park, and participates as a youth coach with his local rugby team Wimborne RFC.

Donations can be made by visiting www.justgiving.com/fundraising/everestforhsp For more information, or if you are a business who would like to get involved in this exciting expedition, please contact Will Watson This email address is being protected from spambots. You need JavaScript enabled to view it. or Jeff Webb This email address is being protected from spambots. You need JavaScript enabled to view it..

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