August 2004 Newsletter

 

So much so that I am in the process of starting my own business working from home. I am a little apprehensive, as you would be, but at the same time thrilled that I now have the self-confidence, plus the technological know how, and last but not least unconditional love & support from my family too, with any luck, be triumphant in this new venture I am about to start. If you would like to visit my site go to http://herbal-nutrition.uk.com/members/gradidgefsp Any feedback positive or negative would be gratefully received.

I do hope you all had a wonderful summer, and all, if not most of you enjoyed some glorious sunshine wherever you went & whatever you were doing. Maybe you were enjoying a well-deserved vacation or just relaxing in your back garden entertaining family & friends relishing & savoring a few versatile scrumptious barbecues with lots of salads of course.

I trust that you will all agree that within the group as a whole we have had a year of successful development & change in all areas. With more changes imminent for the group in the foreseeable future we hope that as a committee we have endeavoured to bring you what we believe is continuity as well as enlightening you on the fruits of life & the opportunities that you may not be aware of that are available to you. Without you the gateway for us all to be able to learn from each other would not enable us to focus on what we can achieve as a group which in turn will present us with the experiences to be able to live life to the fullest of our abilities, “Keep up the good work”.

Until next time, take care, Sharon x.

p.s. I have a ride on trailer for sale complete with electrics. It is designed for use with an electric wheelchair/scooter and is in v.g.c. Anyone interested can contact me at my usual home address/ telephone/or by e-mail to discuss options.

From the group sec’s desk

Hi Everyone

Wow, what a good time we had at Sheffield. Can I draw your attention to Caroline Begg’s write up on page 8. Once again a special thank you for those completing considerable journeys; for Kathy Chambers and the team who fed and watered us throughout the day, and for the positive input to speakers and during open forum.

Personally it gave me the opportunity to meet with co-ordinators, with whom my only previous contact may have been on the phone. As this role becomes more clearly defined, a proactive style more than “I’ll see what happens” appears to have been adopted. This is so much in tune with the committee’s aspirations and sits well with our restructuring activities. However, Kathy Chambers (reg 7) did highlight her general disappointment to her letters and phone calls regarding local get togethers. Where sought; meeting members socially allows an insight into others’ endeavours and invariably ends up with a jolly good laugh…… as it did in Sheffield. Any ideas let Kathy or myself know.

Ian Bennett and I are developing a very cosy relationship with The Charities Commission regarding our application. This year’s AGM will most certainly adopt their procedures, making it a longer time slot and a little more interesting no doubt. Hopefully we will have new committee members in place for the year ahead.

As always we need to know our members’ wishes are being addressed. If we are getting some of it right, that’s okay. If we need some direction then tell us; and tell us again, until you get a response.

See you all in Peterborough.

David Pearce

Useful information

Young carers project

Supporting young people whose lives are affected by caring for a family member.

Who are young carers?

Young carers are children & young people whose lives are affected by the impact of caring for a family member with a disability, long-term illness, mental health problems, or dependency on drugs or alcohol.

What do young carers do?

Young carers regularly take on responsibilities for a family member, often for the person who might look after them. Whilst all young people sometimes choose to help out at home, young carers are unlikely to have this choice. This means that they don’t have time to go out with friends, do homework or just relax & simply enjoy their childhood. Young carers often find the emotional impact of “caring” for someone harder than their practical tasks.

Young carers should have:

  • The choice not to be a carer.
  • Time off from caring.
  • Recognition for what they do.
  • Someone to talk to.
  • Time out with friends.
  • Time to be alone.
  • Time to be ill.
  • Time for rest & leisure.
  • Time for homework.
  • Hopes & plans for the future.
  • Education.
  • Opportunities to have fun & play.

What does the project offer?

  • Someone to talk to who will listen & understand.
  • Support & information.
  • The chance to meet other young carers & make new friends.
  • The opportunity to go on trips & have fun.

When asked what the project means to them, young carers answered:

“The project means a place & time for me to relax and be me. It gives me the opportunity to do things I wouldn’t usually be able to do.” Helen aged 16.

“It’s nice to be in contact with people in the same situation as me” Jack aged 11.

“A chance to get out, and not have to worry. Being able to act like a kid” Tanya aged 14.

“Helps me forget about problems when I am there.” Cathy aged 13.

These centres can offer specialist advice, support, provide counselling, respite holidays, as well as running clubs & activities for children aged between 11 & 21 years of age who maybe as well as coping with school also have demands at home as carers. Up to 175,000 children in Britain undertake caring responsibilities. Their only support is contact with a young carers project. Carers U.K. is fighting for them to get the help & recognition they deserve. For further information visit www.carersonline.org.uk which will give you information on where you can find them in your regional area. Alternatively you can obtain guidance from their help-line advisors on 0808 808 7777 (Wed & Thurs, 10am – 12pm & 2 – 4 pm.

The princess royal trust for carers

If getting out & socializing is virtually impossible for you as a carer this web site could open up a whole new chapter in your life. They have a chat room where you can talk with other carers & a message board where you can tell people about a problem & someone will come back with an answer. Sometimes you don’t want to burden friends & family & they don’t always understand anyway. But other carers do.

The carers get together at 7pm on the internet every night & it’s good fun. Being able to talk to someone who knows what you’re going through as a carer can literally be a life–saver.

For more information, contact 020 7480 7788 or visit www.carers.org.

The Jubilee Sailing Trust

A Southampton charity dedicated to providing adventurous sailing trips to physically disabled people has been lifted to the crest of a wave by a generous cash boost.

The Jubilee Sailing Trust, which runs holidays for mixed teams of disabled & able-bodied people on two tall ships, was awarded £5,000 by Hampshire County Council. The money will help pay for a major revamp of the trust’s first ship Lord Nelson, which is specially adapted to provide full access for people with any physical disability.

A spokesman for the charity, which has taken 21,000 people to destinations from Antigua to the Canary Islands since its inception 25 years ago, said: “The JST is always delighted to receive donations such as this from Hampshire County Council. Without such donations, the JST would be unable to achieve its aims of integrating able-bodied & disabled people through the adventure of tall ship sailing.”

Ken Thornber, leader of Hampshire County Council, said: “The Jubilee Sailing Trust aims to demonstrate that many of the problems related to disability can be overcome by working as a team. I’m delighted to award this grant of £5,000 to help the trust maintain its fleet, so it can continue to provide disabled & able-bodied people with the opportunity to work together & learn how to sail a tall ship.” For more information on the JST call 023 8044 9108.

Canine Partners

“Making the miracle of greater independence possible”.

The majority of our members are probably conscious of the fact that Stephanie Flower, the group’s help-line adviser, (come agony aunt) has a primary carer who is different to most in the name of Frodo.

Canine Partners train & allocate assistance dogs with individuals (18 years plus) with mobility impairments to help increase their independence & quality of life. Specialist training techniques used are based on motivation through play, praise & reward to teach the dogs how to behave in public & to enjoy their work.

A Canine Partner can respond to over one hundred commands, including:

  • Retrieving a wide variety of items such as keys, an inhaler, crutches or the phone.
  • Helping to stabilize during wheelchair transfers.
  • Passing over the purse & items at checkouts.
  • Carrying out a range of emergency responses procedures.
  • Emptying the washing machine.
  • Opening & closing doors.

Imagine the confidence this can bring a partner & the peace of mind experienced by their family or friends. A Canine Partner has the ability to make the difference between reliance on a carer & independence.

Potential assistance dogs are selected using specially developed aptitude tests. Essential qualities include a gentle, co-operative nature, curiosity, a strong desire to be with people & a steady temperament. The recipients come from all walks of life & have a wide variety of physical disabilities. The one thing they all have in common is a drive to become more independent & a commitment to do what is necessary to have an assistance dog in their life.

Caring for & managing a dog not only enriches life in practical ways, but also provides physiological, psychological & social benefits that help people keep happy & healthy. A Canine Partner willingly offers companionship, unconditional love & affection. In the process of learning to care for & manage their dog, a Partner experiences a sense of achievement & purpose. Whilst out & about a Canine Partner is a catalyst for conversation, meeting new people & increasing their partner’s opportunity for social interaction.

To care for & manage a Canine Partner involves being responsible for daily exercise, feeding, grooming & playing, which requires a Partner to discover new strategies to complete these tasks. This increased activity not only helps to maintain muscular strength & joint mobility, but can also encourage a sense of achievement.

Canine Partners has developed a rigorous assessment process to identify appropriate applicants. Potential Partners are asked to complete & return an application form & with their permission a medical report is requested from their doctor. Following a home visit by an occupational therapist, eligible applicants are then invited to attend assessment days at a training centre & evaluation can take place on how they interact with their environment & their dogs. Following careful & thorough assessment, the matching process between each person & their Canine Partner occurs, selecting the right dog for the right person & vice versa.

Further information can be obtained from:

Canine Partners,
Mill Lane,
Heyshott,
Midhurst,
West Sussex
GU29 OED

Tel: 08456 580480.
Website: www.caninepartners.co.uk
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Gowrings’ mobility smooth ride guide

The indispensible guide to accessible locations in the u.k.

This new guide book provides “hands on practical addition” to any disabled traveller’s rucksack or car glove box”. With every part of the U.K covered, there are ideas for days out for disabled people in every part of the country. The Smooth Ride Guide endows you with a huge range of activities, attractions, accommodation & leisure & sporting facilities available & accessible to people with mobility difficulties & wheelchair users.

Gowrings mobility has been in the business of providing transport solutions to wheelchair users for nearly 40 years, with the hope that this guide will enable you to get out more & get more out of life as well as being able to explore the U.K.’s furthest corners or maybe just find out what is available & accessible in your local area.

Your smooth ride guide contains useful information & access classifications for thousands of places of interest throughout the U.K. including:

  • Hotels, guest houses & self-catering accommodation.
  • Travel & transport connections including all major U.K. airports, rail, road, taxis, buses & ferries.
  • Entertainment, sporting & cultural venues.
  • Everything to smooth your way around the U.K.
  • Clear symbols highlighting accessibility for accommodation & attractions.

To receive your copy of the Gowrings Mobility Smooth Ride Guide call LO-CALL 0845 608 8050. Or send a cheque made payable to Gowrings Mobility for £12.50 to – Gowrings Mobility, FREEPOST, Bone Lane, Newbury, Berkshire RG14 5ZW. Alternatively you can place an order via their web site at www.gowringsmobility.co.uk

Servicecall

A disabled person’s passport to service

ServiceCall is a system designed to make it easier for you to use petrol stations, shops & services. You simply aim a small infrared transmitter to activate one of the thousands of ServiceCall receivers in the windows of petrol stations, banks, shops etc. No more sounding horns, flashing lights or having to ask passers-by for help – just look for ServiceCall. When ordering your ServiceCall receiver, you will be sent 10 leaflets for you to hand out to local outlets where you would like to see ServiceCall installed. Any of these outlets that order a receiver will automatically be added to the national list, so helping other disabled people.

A few suggestions for your receivers – petrol station, bank, building society, post office, chemist, shops, superstore, fast food outlets, job center, shopmobility, library, police station, doctors, cinema, and work place are just a few. Where reasonable, service providers are required to provide additional assistance to disabled people to enable them to use their services. ServiceCall is already available at thousands of places & the number is growing daily. Service Call costs just £9.95 which includes postage, a ServiceCall sticker for your car & a list of all receivers already installed in your area. Members will also be sent a new updated mailing list every 12-18 months free of charge.

ServiceCall is designed & manufactured by Autochair Ltd. See all the receivers installed with MAP at www.disability-resources.com. To order the ServiceCall system send a cheque made payable to Autochair Ltd to the following address: Autochair Limited, FREEPOST, Bakewell, Derbyshire, DE45 1XA. Alternatively, you can order by Access or Visa by calling free on 0800 214045 or by Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Reminder

We are currently looking for a volunteer for the position of area coordinator for region 5, which covers Norfolk, Essex, Suffolk and Cambridgeshire. Stephanie Flower has been helping us with this on a temporary basis, but could now do with a permanent replacement on account of her workload. Anyone interested, please contact David Pearce on: 020 8551 2905. David will be able to provide full details of what this role entails.

Carers

Further to our meeting at the Day Centre, Milford, Surrey, on 24-04-04 it was highlighted that not enough emphasis is put on the role of being a carer. It is so easy to be endearing towards a person who has an obvious disability & not look beyond that, to the needs of the individual who is caring for them.

At present the only opportunity within the group for carers who care for us to share & discuss some of the problems & difficulties they experience is twice a year at the above venue. Following the above meeting the committee discussed this issue & it was agreed that we offer the chance of a carers “list”.

This list would give our members, in particular, the ones who are unable to attend our meetings, the chance to communicate with each other at their own convenience. To enable us to facilitate a carers “list” we would require some information from those of you who want to play a part.

It seems eminently sensible for this project to be driven by a carer (or carers) whereby the very special situations/circumstances can be approached from a personal experience viewpoint. This neglected area of our care/support efforts must be readdressed and David Pearce would be most interested in an informal chat with interested parties.

The National Hospital of Neurology & Neurosurgery

Rachel Taylor who is the genetical nurse at the National Hospital, has kindly given us her contact details. Rachel says she is always willing to offer advice and assistance, and those of us who are visiting the hospital to see a consultant, may be interested in calling Rachel in advance, and arranging to see her first. Rachel suggested that chatting with her prior to seeing a consultant/specialist, may take some of the stress and worry out of ones hospital referral, particularly if it is ones first experience of this. Rachel can be contacted on: 0207 6762196.

Proposed transmission of newsletter by email

With reference to the article on “Administration Cost Reductions” in the May newsletter the process of distributing as many newsletters as possible by email has now begun. For this issue, as a trial run to iron out any problems, 10 members have been selected to receive this publication by email. If all goes well, this process will begin in earnest for the November newsletter. I now have the software to produce and transmit the newsletter in Adobe pdf format. A pdf file is more secure than a Microsoft word file and it is also much smaller in size, making it far more suitable for electronic transmission. Any members who are unfamiliar with Adobe pdf, should visit the Adobe website where all should be clarified. For any members who can’t open a pdf file, Adobe Reader can be downloaded from this website at no cost, enabling the file to be opened.

Visit, www.adobe.co.uk , click on the “Get Adobe Reader” icon, and then follow instructions.

Regional news

Sheffield Conference – 5th June

I was thrilled to be invited to write about the Sheffield Conference on June 5 and hope it serves as a pleasant reminder for those who attended and useful for those who couldn’t make it.

David opened the meeting by welcoming everyone, and although I thought an attendance of 32 was rather low, it was great to be welcomed by faces, both familiar and new.

We certainly appreciated the distances that everyone travelled. Some members came from as far a field as Glasgow and Dorset.

First speaker of the day was Olive German, a Physiotherapist from the Neurology Outreach Service at the Royal Hallamshire Hospital.

Olive covered many aspects of HSP, concentrating on common problems and subsequent goals.

Problems

  • Olive demonstrated how HSP sufferers walked and got up from a chair compared to most people. I was very impressed with her accurate understanding of our general movement and the obvious strain we place on our backs.

    We take wider strides to compensate for the balance and, in turn, place increased tension on the outside of our foot. This weight is transferred to the hip and then throws the rest of the body out of balance.
  • We gave some example of common problems we experience e.g. – stiffness, balance, standing up straight, posture and fatigue. All these problems relate to the muscles that we use and the particular way in which we use them.
  • Olive also covered limited repertoire of movement - (Etc crossing legs and getting out of bed.) This involves the body using the correct movements so as not to put strain on the back. For example; to get out of bed correctly, one needs to bend the knees, move the bum and then roll the legs over the bed.

Goals

  • Maintain agility, and tone with specific stretches to the affected area which increases strength and improves alignment.
  • Carry out free assisted exercise, swimming and use a gym ball.
  • Liaise with your doctor; they can suggest certain drugs, splints, or the Function foot stimulator and can refer you to a Neuro Physio.
  • Pilates (at a basic level) is also believed to be helpful exercise for the lower abdominals.

Olive’s talk was followed by a fantastic Lunch which was all thanks to Kathy and her wonderful helpers! Lunch gave everyone the opportunity to chat and I was fortunate enough to talk to Olive about a few questions I had. I asked about Botox injections in my ankles to help with the tight muscles. She said that it was a good idea and advised me to see a Neurologist as I would need splints to support the ankles. She also stressed the importance of going to someone who would know the correct dosage of Botox.

After lunch, we had a few words from Nigel, David, Mike and Ian.

Nigel is a “Disability Champion” who looks after those with impairment at work, concentrating at improving disabled access within the workplace. If you need any help in this area, don’t hesitate to get in touch with Nigel Tel: 01252 728 095.

Mike greeted us with some positive news; the yearend was £200 in credit, unlike the previous year which was £600 in debt (due to buying computer equipment). He thanked everyone for paying their subscription and suggested that we could further reduce admin costs by emailing the newsletter to those with access to the internet, a very good idea indeed.

Ian demonstrated how the Functional Foot Stimulator has helped him. Remember you can get this privately or through your council if they are willing to sponsor you. To find out more, visit their website: www.salisburyfes.com. Ian also called for more local meetings in all regions in order to access those who haven’t made meetings in the past.

David acknowledged all coordinators (including Kathy) for their support. He is looking for additional help to join in major rolls, so please let him know if you are available.

The last speaker of the day was Tony Murphy from the Patients Advisory Liaison Service (PALS), based at Walton Centre in Liverpool. PALS has been running for three years and is the only dedicated Neuroscience centre in the UK This service caters for all patients, family members and carers. They are a confidential, independent agency for complaints and serve as a patient public info forum. They deal with informal, not formal issues and can assist in sending you to the right place.

To complete the day, we formed a forum and discussed what exercises we do and how they help us.

We covered the following exercises:

Top of the list was swimming. A few people mentioned that Aquacise was very good and had noticed that warmer water makes it harder to swim.

As mentioned before, Yoga and Pilates at a basic level, also proves useful.

Horse riding is good for balance and straightening the back, however, you might be very stiff for a few days afterward as you’re using muscles not usually used. Creatincan was recommended to take before and after to prevent the stiffness.

If horse riding is not an option keeping a folded pillow between your knees while you sleep is good, that is if you can keep it there during the night.

I’d like to thank everyone who contributed to another successful conference (Nigel and Ian, thanks again for the lift!) I look forward to seeing you all again at the AGM in Peterborough on September 11.

Hope this finds you all well.

C.B – Region 2

A new coordinator for region 8

Could we extend a warm welcome to Pattie-Raven Chapman who has very kindly offered to help out in the Beds, Northants, Leicester, Notts and Lincs areas.

The coordinator role is an integral part of our restructuring exercise and I’m sure Pattie’s enthusiasm will be a benefit to us all.

Members’ letters

Dear Friends,

I managed to attend the conference last Saturday (5th June) and was glad that I did, for 2 main reasons.

Firstly, I had NEVER travelled by rail in a wheelchair before and, secondly I met new people.

The FSP conference was my motivation to get on & 'pull my finger out', to arrange for rail travel.

I needn't to have worried, all went smoothly.

At the York end, a ramp was laid down to enable me to enter the coach. I was pushed onto the train, placed in a designated position in the coach and met by on-board staff who (whilst not making a fuss) assured me of their help should I need it. At the Sheffield end, a ramp was placed at the doorway to my coach and I was helped off. It isn't difficult to see how all of this happens. In my case coach F (the quiet coach) has a designated area for wheelchairs. Where seats 44 & 45 would have been, there is a gap. The station staff know roughly where coach F will be and so can have the ramps ready.

The main thing is to have booked this in advance of the journey. Simply call your local station and ask for 'disabled assistance'. Or, if you don't know the number, call 08457 484950. Provided that you can give them all the information that, they need (e.g., journey from-to and times), they can advise you of the local station phone No.

The conference:

I was fortunate on my arrival at Sheffield, to meet Tony Murphy, one of the guest speakers. We shared a taxi to the venue.

I doubt if the venue could have been bettered. It was ideal. Easy access for wheelchairs. A large reception area with plenty of tables & chairs (and space). People who were willing to fetch and carry tea & coffee, there was a disabled loo and easy access into the main room.

We owe a dept of thanks to Kath Chambers for arranging all of this. It was my first conference, and the first time that I had met other FSP members (apart from Mike Fawcett).

Unfortunately there were only 4 of us from region 10. I had hoped to meet more of you. Another time perhaps?

People had come from Shropshire, Hampshire, and even Scotland. The day passed-by so quickly. I would have liked to have talked to people for longer.

Our first guest speaker was Olive German, a physiotherapist who specialises in Neurological problems. If you have been to physio you will probably have heard most of what Olive had to say. But one learns something new all the time. For instance, I didn't know that PlLATES can teach one how to exercise a bad back.

In the afternoon, FSP member Nigel Bulbeck spoke about the DDA and the need for employers to comply with the DDA (Disability Discrimination Act). Nigel had trained as a disability advisor for employees within his union. He offered to pass on that knowledge to anyone who was experiencing problems at work.

Ian Bennett demonstrated the Electrical Stimulator system (which allows the foot to 'lift' when walking) for the benefit of those of us who hadn't seen it before.

And the afternoon's quest speaker, Tony Murphy (who I had met at Sheffield station) talked about his involvement with PALS (Patient Advice and Liaison Service) and what PALS could do for we patients.

PALS operates in most hospitals. It is essentially somewhere where complaints/ information / advice can be obtained. It is independent from the Dr's etc, and any information disclosed by a patient is strictly confidential.

PALS is basically a signpost. Manned by volunteers. It gives the caller somewhere to enquire about other resources (other organisations, phone No's & background information).

During the Open Forum, members were encouraged to discuss how they each cope with their disability. Quite a lot was talked about the need for exercise and how people achieve that need. Some go swimming, some do floor exercises, and one even manages to ride a horse, would you believe.

The 'Expert Patients Programme' was mentioned briefly.

I am attending this course at present. It consists of 6 weekly sessions of about 2 1/2 hour duration each and is intended for people with long term (chronic) illnesses. It covers such things as: Self Management of your condition, Making an Action Plan, Relaxation, Problem Solving, Fitness, Fatigue, Nutrition, Communication, Making Treatment Decisions, Depression, Future Plans & lots more besides. A course well worth attending, if only to meet others' who are in a similar position to ourselves.

Unfortunately, I had to leave earlier than I had planned and so missed most of the forum. 3 of us shared a lift (offered by Kathy's daughter) to Sheffield station.

It wasn't possible to pre book a taxi. They couldn't guarantee times. After brief chats with both David Pearce & Ian Bennett, I can't help but get the feeling that there is so much optimism, enthusiasm & energy being spent on seeing FSPSG succeed and become a registered charity. The initial goal is to 'reach' as many people as possible & in doing so, gain more members. I've missed a lot out, but hopefully, you get a 'flavour' of the day.

R.E Region 10

A.G.M. & FSP Conference Saturday 11th September

Notice is hereby given that the Annual General Meeting of the Familial Spastic Paraplegia Support Group will be held at: 10.15 am on Saturday 11th September 2004.

Venue:
The Peterborborough Professional Developement Centre
Cottesmore Close
Westwood
Peterborough
PE3 9TP

Full conference agenda

10.15 COFFEE and welcome.

10.45 AGM (see page 15 for agenda)

11.30 THE NATIONAL HOSPITAL. Professor Nick Wood (our medical advisor) has very kindly agreed to update us on how research is taking those steps forward both in how those with FSP may better deal with it; and how its reoccurrence in our children may be eliminated. There will be the opportunity for questions

12.15 THE WOLFSON NEUROREHAB CENTRE. Richard Sealey: Another chance to examine the role of physio therapy and its significance in a mobility maintenance programme. Richard is most willing to take questions.

13.00 LUNCH.

14.30 ACCESS TO WORK BUSINESS CENTRE. Karen Sullivan will be talking through the legal requirements of companies’ in supporting and maintaining employment as disabilities alter.  Job Brockerage bodies helping the disabled back into work where career changes have occurred will also be examined.

15.15 OPEN FORUM: As always the chance for us all to share experiences and to seek an answer to that tricky question. Almost certainly others will have previously encounted the very same experience and be happy to talk through how they dealt with it. Guidance and suggestions on the group’s future development is most welcome.

16.15 COFFEE AND CHAIRMAN’S CLOSING WORDS.

16.30 MEETING ENDS: Have a safe journey home. Hopefully we will all have a better understanding of FSP, have made some new friends and picked up on the groups positive approach to the exciting year ahead.

David Pearce Group Secretary

AGM agenda

  1. To appoint a temporary chairman solely to chair this meeting
  2. Apologies for absence
  3. To adopt our new constitution
  4. Minutes of the previous AGM
    To be agreed and matters arising
  5. Committee Members Reports
  6. Appointment of Executive Committee Members* (Charity Trustees)
    Nominations are required for the following Executive Committee Members*:
    Chairman, Secretary, Treasurer, Membership Secretary
    Nominations should be sent to the current Secretary, Mr David Pearce and must be received by Saturday 28th August.
  7. Members proposed resolutions (for improvement & change)
    Details will be given once proposed resolutions are received. Proposed resolutions should be sent to the current Secretary, Mr David Pearce and must be received by Saturday 28th August.
  8. Any other business
    It would be appreciated if members would notify the secretary of items to be included prior to the meeting.

*Please note that Executive Committee members will become the Charity Trustees if our registration with the Charity Commission is successful. Therefore, anyone considering a committee position must be familiar with the responsibilities of a charity trustee. All relevant information is available at www.charitycommission.gov.uk or by phoning the Charity commission helpline on: 0870 333 0123

David Pearce Group Secretary

Accounts for year ended 30th april 2004

A detailed report on our accounts will be presented by Mr Mike Fawcett (Treasurer) during our AGM in September.

Last year a surplus of £200 was recorded, compared with a loss of £612 on the previous year.

In Spring 2004 we collected subscriptions in advance amounting to £1353, so this amount is being carried forward to 2004/2005.

With donations amounting to £625, we were pleased to help a member with a grant of £500 to assist with the purchase of a new scooter.

Mike Fawcett - Treasurer