Searching the site

Over the years, many members have written pieces in our Newsletters about their own experiences. All this information is available here on the web site. When you use the "Search..." box at the top of each page you will get a list of the Newsletters (or web pages) which contain your search text. Clicking on one item will take you to the Newsletter (or web page). To find the text quickly in the article start the browsers "Find" function (often Ctrl/F) then key in your search words again. This takes you to the first place in the document with those words.

Below are some examples of searches, to try one out:

  1. click on one of the highlighted words
  2. click the title of one of the listed results
  3. then use "Find" (Ctrl/F) to find the first mention

Help Line service

Stephanie Flower, a qualified Counsellor and trained Social Worker is one of the committee members and runs the Help line for the HSP/FSP Group. Stephanie has been running the helpline since 1989. She is always happy to speak to anyone with queries and advice or just a general chat.

She is often in contact with members for all sorts of reasons and collects a lot of experience of what others have gone through. This allows her to provide members with valuable insights and advice about particular situations.

Stephanie has described her contacts with people as follows:

“...I always find that people I talk to are so relieved when they can discuss their fears and problems with someone who understands the condition. When you are first diagnosed it can feel like you are the only one with FSP, and it helps when you find that you are not alone.

Although most people have similar symptoms, FSP is never quite the same in two people. In my family, four of us have FSP and it affects each of us differently. Some people have a lot of pain, whilst others don’t.

In addition to the calls I get from members and potential members, it is quite common for me to get calls from medical staff (Doctors, researchers, Physios etc.) who want to find out about the condition.”

Stephanie can be contacted on 01702 218 184 and by email at: This email address is being protected from spambots. You need JavaScript enabled to view it..">This email address is being protected from spambots. You need JavaScript enabled to view it..

How to Join - don't feel alone!

If you've been diagnosed with Hereditary Spastic Paraplegia (HSP) or Familial Spastic Paraplegia (FSP) - you are not alone.

We are here to help and cordially invite you to join us - Membership is open to those with a diagnosis, their carers, or to anyone with a specific interest in the condition.

Subscription Fees

  • £15 for standard membership. (A further one-time fee of £5 entitles an additional family member to a vote at our AGM.)
  • £10 for pensioners/senior citizens or non-wage earners.
  • In some circumstances, the subscription may be waived.

Image1. Application Form - click the button on the right, print and fill in the form, send it to the Membership Secretary

Image2. Standing Order Form - click the button on the right, print and fill in the form, send it to YOUR BANK

Image3. Gift Aid Form - if you pay UK taxes, this form allows us to reclaim the tax on monies paid to us. Click to print the form, fill it in and send it with your application form.